30 years ago, the Huntington's Disease Collaborative Research Group identified the Huntington's disease (HD) mutant gene. By examining 75 disease families, they found a trinucleotide (CAG) repeat that is expanded…
Run for HD-Care in the OC Marathon/5K!
New year means new opportunities to support UCI HD-CARE! OC Marathon May 6th & 7th 2023 is offering Kids Run, 5K Run, Half Marathon, and a Full Marathon, and we…
How Huntington’s Disease Affects Different Neurons
Brand new publication of 2023 highlighting how different types of neurons are affected in Huntington’s disease in Neuroscience News. Paper was originally published in Nature Communications from the labs of Dr. Manolis Kellis, Dr. Myriam Heiman and Dr. Ann Graybiel.
Run for a Claus 5K
Hello HD-CARE Friends and Family,Thank you to those who supported our Run for a Claus 5k fundraising event on December 10th. The funds raised from the run will support our HD community in making…
HD-CARE Symposium 2022
After a two year break due to COVID, HD-CARE again held its annual symposium at the Sue and Bill Gross Stem Cell Research Center on October 29. In a change…
Prolonged Grief Disorder, A Novel Diagnosis
Contributors: Ken Kast and Frances Saldaña HD-CARE Board Members Prolonged Grief is a novel diagnosis. It was officially included in the 2021 update to The Diagnostic and Statistical Manual of Mental Disorders,…
Roche/Genentech plans for GENERATION HD2, a new Phase II clinical study
Roche and Genentech announce new clinical trial to begin early next year - Generation HD2 - to explore the use of tominersen in younger, less symptomatic HD patients. Click here…
American Psychiatric Association: Prolonged Grief Disorder
Grief is a natural response to the loss of a loved one. For most people, the symptoms of grief begin to decrease over time. However, for a small group of…
STRIDE-TRANSCEND Summer Symposium
Presentations – Posters – Networking – Lunch SATURDAY, JULY 23RD9:30 AM – 2:00 PMWCH Room #205 and 206 Keynote Speaker and Patient Advocate: Frances SaldañaPresentation Title: “Advocacy and Promoting Excellence…
Better than CRISPR? Another way to fix gene problems may be safer and more versatile
The following is an excerpt from a Science | AAAS article - read more here > "A flurry of studies in the past few years in mice suggests epigenome editing…