ASGCT is excited to announce the launch of the patient-friendly resources to educate on gene therapy approaches for Huntington’s disease – it is LIVE and available on our website (linked above) including a short animated video, infographic, and dynamic written content. Below is a Media Kit with further detail on our patient education program, what topics are to come this fall, and social media ideas! We encourage you to share these resources with your various channels.
Please feel free to utilize some of our other resources as well:
- Gene Therapy Basics
- Clinical Trials Process
- Clinical Trials Finder – searchable tool find all active and recruiting gene and cell therapy trials in the U.S.
- Webinar: Gene Therapy – Then, Now, Later
- Webinar: The Science Behind Gene Therapy
Medicaid Waiver for Stair Lifts
There is a "waiver" that allows for Medicaid to cover stair lifts for individuals with certain conditions who qualify and it falls under Home and Community Based Services (HCBS). Please look into it if your HD family member needs assistance in securing a stair lift. Being able to come downstairs can make a big difference in improving the quality of life for a person with Huntington's disease. Learn more here
GeneFo connects individuals affected by Huntington's Disease to other patients and families, to HD experts, and to innovative clinical trials near you.
Click to register for free, and try out 'My Charts', an innovative digital tool that lets you track your personal progress over time and also instantly learn more by seeing what best works for others that have the exact same symptoms!