Huntington's Disease Community Advocacy, Research & Education
"Skyhawk Therapeutics announces twelve-month results from Phase 1/2 clinical trial of SKY-0515 in Huntington’s disease." See the full article here: https://www.hda.org.uk/news/improvement-in-huntingtons-disease-patients-in-skyhawk-therapeutics-trial/?fbclid=IwY2xjawSK0ZJleHRuA2FlbQIxMABicmlkETF2blNzVmZwUkdKNVBLaTVIc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHhgg2aNTt20l3b9AQ5wZn0niDF1zyTU4PJfEHdmlbVoOgs1eU3cBBuwLBcVo_aem_Rm5hVdb90gjJJPjY_tmQgQ
Nancy Wexler did an interview with the Columbia News: Devoting Your Life to Studying the Disease That Afflicts You See the full interview here: https://news.columbia.edu/news/devoting-your-life-studying-disease-afflicts-you?bbeml=tp-kOgnhSY2TESsVKneKkvHVw.jRdNdjYVHzk-JYNf-9o5BLg.rIa8dzWPW2UmdklL1N13fTA.l140HAKQppE27gsGn6O49qw
The Huntington's Disease Foundation announced the official release for Nancy S. Wexler's memoir. The book is now available! You can purchase the book directly from the publisher, the Cold Spring…
The FDA met with uniQure on March 2, 2026 about the future of AMT 130. View full article here: https://www.hdreach.org/file_download/inline/7dd4837d-98b5-44b9-b71e-552b01e021cb
View full article here: https://app.donorview.com/communication/view?prm=tqITQp5N0w3BYK94HwsDgB1WosiCtMQprdkQ_yrGx2fJMJ-MHmXx2ZGQ8DNYz-ID95O7AnDE0R-1zUQD0mvQFQ_NKHNEzi1X7SqAthLR9N_6HdDM3p8Qvm9cOrcdnICjOjy892xIEGYZKmqF0pgrxwRXloZ7lWYkeDtjlQh8tvoFlDStnFAZuLVd0BEGVwWNSk2WuE0cBMycymo95ifdKxsmji6IxOARARWGWIEM3go1
From Action Alert: Rare Disease Week is right around the corner, and this is a key opportunity to show up for the Huntington’s disease community and amplify our collective voice.…
The California Institute for Regenerative Medicine (CIRM) has launched the $100 million RAPID program to accelerate the development and delivery of platform-based genetic therapies for rare diseases. Building on the…
A press release from Skyhawk Therapeutics announces nine month interim results in patients from its Phase 1 clinical trial of SKY-0515 as a treatment for Huntington’s Disease. See the full…
The Menifee City Disabilities Fair, sponsored by the city of Menifee November 8th, 2025: UCI HD-CARE board member Leslie Frias was there to raise awareness for Huntington Disease research at…
One of the highlights in 2025 for President Emeritus Frances Saldana - representing HD-CARE at the HSG Clinical Congress in Tennessee and promoting her book: Falling Angels - A Rhapsody…