From Action Alert: Rare Disease Week is right around the corner, and this is a key opportunity to show up for the Huntington’s disease community and amplify our collective voice.…
CIRM approves new $100M plan to accelerate genetic therapies rare disease patients
The California Institute for Regenerative Medicine (CIRM) has launched the $100 million RAPID program to accelerate the development and delivery of platform-based genetic therapies for rare diseases. Building on the…
Skyhawk Therapeutics Announces Nine Month Interim Results
A press release from Skyhawk Therapeutics announces nine month interim results in patients from its Phase 1 clinical trial of SKY-0515 as a treatment for Huntington’s Disease. See the full…
Menifee City Disabilities Fair
The Menifee City Disabilities Fair, sponsored by the city of Menifee November 8th, 2025: UCI HD-CARE board member Leslie Frias was there to raise awareness for Huntington Disease research at…
One of the highlights in 2025 for President Emeritus Frances Saldana - representing HD-CARE at the HSG Clinical Congress in Tennessee and promoting her book: Falling Angels - A Rhapsody…
HD Hero Sarah Tabrizi as One of Nature’s 10
Huntington disease researcher Dr. Sarah Tabrizi was named one of Nature's 10: Ten people who helped shape science in 2025 Full article: https://hdfoundation.org/wp-content/uploads/2025/12/Natures-10-2025.pdf?bbeml=tp-kOgnhSY2TESsVKneKkvHVw.jpYuoxtPSWEC1xT8c_1Qc5A.r_YWdi7howEK7tH93l09m-Q.lJ1AInFUl6EWc4ZKWCHoE7w
New Memoir: “FALLING ANGELS – A Rhapsody of DNA, And A Family At War With Huntington’s Disease”
Sheds Light on the Silent Struggle of Families Battling Huntington’s Disease (Temecula, CA) — In her deeply moving and unflinchingly honest memoir, FALLING ANGELS - A Rhapsody of DNA, and…
HD successfully treated for first time
BBC News reports on early clinical trial results of a gene therapy delivered directly into the brain to lower mutant huntingtin. Patients treated so far show signs of slower disease…
Oxytocin in Huntington’s Disease and ALS-FTD
The journal Frontiers in Molecular Neuroscience spotlights a comprehensive review titled “Oxytocin in Huntington’s disease and the spectrum of amyotrophic lateral sclerosis–frontotemporal dementia” by Bergh et al. The article shares…
Muscle Loss as an Early Symptom of Huntington’s Disease
Read HD Buzz's article on muscle loss and nutrition in Huntington's disease by Dr. Sarah Hernandez. Full article: https://en.hdbuzz.net/body-in-decline-muscle-loss-as-an-early-symptom-of-huntingtons-disease/?fbclid=IwY2xjawMDT3xleHRuA2FlbQIxMABicmlkETFJNXpTbVhsUWlZZ09kN0RiAR7Y2j8DqpPo1cJLN1xHE2RjI6ibKyvJ2mzqwxrAmo9_vXSxq0pkG0YtYWxBVg_aem_b9-gDhYXRSgvWzJNsW5ikQ