Huntington's Disease Community Advocacy, Research & Education

  • Home
  • HD-Care
    • Board of Directors
    • Scientific Advisory Board
    • What is HD?
    • Letter from the Scientists
    • Stories
  • Advocacy
  • HD Clinic
    • Enroll HD
  • News
    • Events
    • Videos
    • OC Marathon
  • Resources
  • Gallery
  • Clinical Trials
  • Donate
    • Portillo Children Memorial Fund
  • Contact Us
(714) 393-8095[email protected]
845 Health Sciences Rd, Room #4100 Irvine, CA 92617
[email protected] (714) 393-8095 845 Health Sciences Rd, Room #4100 Irvine, CA 92617

Huntington's Disease Community Advocacy, Research & Education

  • Home
  • HD-Care
    • Board of Directors
    • Scientific Advisory Board
    • What is HD?
    • Letter from the Scientists
    • Stories
  • Advocacy
  • HD Clinic
    • Enroll HD
  • News
    • Events
    • Videos
    • OC Marathon
  • Resources
  • Gallery
  • Clinical Trials
  • Donate
    • Portillo Children Memorial Fund
  • Contact Us

News

Home>News (Page 2)

Prolonged Grief Disorder, A Novel Diagnosis

10/03/2022 Kirsten Klein

Contributors:   Ken Kast and Frances Saldaña HD-CARE Board Members Prolonged Grief is a novel diagnosis.  It was officially included in the 2021 update to The Diagnostic and Statistical Manual of Mental Disorders,…

Read More

Roche/Genentech plans for GENERATION HD2, a new Phase II clinical study

09/26/2022 Kirsten Klein

Roche and Genentech announce new clinical trial to begin early next year - Generation HD2 - to explore the use of tominersen in younger, less symptomatic HD patients. Click here…

Read More

American Psychiatric Association: Prolonged Grief Disorder

09/26/2022 Kirsten Klein1 Comment

Grief is a natural response to the loss of a loved one. For most people, the symptoms of grief begin to decrease over time. However, for a small group of…

Read More

One-on-One Meetings with Medicine: Precision Health at the Intersection of Health and Neurodegenerative Disease

09/15/2022 Kirsten Klein

Join us for this hybrid community lecture featuring Leslie Thompson, PhD, and Anna Morenkova, MD. This lecture will be held both in-person at Sue & Bill Gross Stem Cell Research…

Read More

The 988 Lifeline

07/22/2022 Kirsten Klein

988 is now active across the United States. This new, shorter phone number will make it easier for people to remember and access mental health crisis services. (Please note, the…

Read More

YARR Leadership Academy applications are now open!

07/19/2022 Kirsten Klein

The EveryLife Foundation for Rare Diseases is excited to offer the return of the Young Adult Representatives of RDLA (YARR) Leadership Academy, a series of on-line courses offered to a select…

Read More

STRIDE-TRANSCEND Summer Symposium

07/01/2022 Kirsten Klein

Presentations – Posters – Networking – Lunch SATURDAY, JULY 23RD9:30 AM – 2:00 PMWCH Room #205 and 206 Keynote Speaker and Patient Advocate: Frances SaldañaPresentation Title: “Advocacy and Promoting Excellence…

Read More

Better than CRISPR? Another way to fix gene problems may be safer and more versatile

06/05/2022 Kirsten Klein

The following is an excerpt from a Science | AAAS article - read more here > "A flurry of studies in the past few years in mice suggests epigenome editing…

Read More

HD-CARE DOES THE OC MARATHON

06/05/2022 Kirsten Klein

By Frances SaldanaThe much anticipated 2022 Orange County Marathon on the weekend  of May 1st turned out to be more than we could have hoped for!COVID kept us hunkered down…

Read More

Hereditary Disease Foundation Webinar: “Huntington: The Story of an Ancient and Innocent Gene.”

05/25/2022 Kirsten Klein

May is HD Awareness Month! Hereditary Disease Foundation's May Research Spotlight Seminar was “Huntington: The Story of an Ancient and Innocent Gene.” If you missed it or would like to…

Read More

Posts navigation

Older posts
Newer posts

Archives

  • May 2023
  • April 2023
  • March 2023
  • February 2023
  • January 2023
  • December 2022
  • November 2022
  • October 2022
  • September 2022
  • July 2022
  • June 2022
  • May 2022
  • April 2022
  • March 2022
  • November 2021
  • February 2021
  • November 2020
  • May 2020
  • April 2020
  • February 2020
  • November 2019
  • September 2019
  • June 2019
  • May 2019
  • January 2019
  • December 2018
  • September 2018
  • August 2018
  • July 2018
  • May 2018
  • April 2018
  • March 2018
  • December 2017
  • October 2017
  • July 2017
Copyright ©2023 . Education Zone Pro | Developed By Rara Themes. Powered by: WordPress.