Contributors: Ken Kast and Frances Saldaña HD-CARE Board Members Prolonged Grief is a novel diagnosis. It was officially included in the 2021 update to The Diagnostic and Statistical Manual of Mental Disorders,…

Contributors: Ken Kast and Frances Saldaña HD-CARE Board Members Prolonged Grief is a novel diagnosis. It was officially included in the 2021 update to The Diagnostic and Statistical Manual of Mental Disorders,…
Roche and Genentech announce new clinical trial to begin early next year - Generation HD2 - to explore the use of tominersen in younger, less symptomatic HD patients. Click here…
Grief is a natural response to the loss of a loved one. For most people, the symptoms of grief begin to decrease over time. However, for a small group of…
Join us for this hybrid community lecture featuring Leslie Thompson, PhD, and Anna Morenkova, MD. This lecture will be held both in-person at Sue & Bill Gross Stem Cell Research…
988 is now active across the United States. This new, shorter phone number will make it easier for people to remember and access mental health crisis services. (Please note, the…
The EveryLife Foundation for Rare Diseases is excited to offer the return of the Young Adult Representatives of RDLA (YARR) Leadership Academy, a series of on-line courses offered to a select…
Presentations – Posters – Networking – Lunch SATURDAY, JULY 23RD9:30 AM – 2:00 PMWCH Room #205 and 206 Keynote Speaker and Patient Advocate: Frances SaldañaPresentation Title: “Advocacy and Promoting Excellence…
The following is an excerpt from a Science | AAAS article - read more here > "A flurry of studies in the past few years in mice suggests epigenome editing…
By Frances SaldanaThe much anticipated 2022 Orange County Marathon on the weekend of May 1st turned out to be more than we could have hoped for!COVID kept us hunkered down…
May is HD Awareness Month! Hereditary Disease Foundation's May Research Spotlight Seminar was “Huntington: The Story of an Ancient and Innocent Gene.” If you missed it or would like to…