Scientists at the Broad Institute of MIT and Harvard, Harvard Medical School, and McLean Hospital have discovered a mechanism by which the inherited genetic mutation in Huntington's disease leads to…
New research from the Thompson Lab!
Congrats to the Thompson Lab on their recent discovery published in Nature Neuroscience discovering molecular mechanisms driving RNA processing defects in Huntington's disease! Read here: https://www.nature.com/articles/s41593-024-01850-w?utm_source=rct_congratemailt&utm_medium=email&utm_campaign=oa_20250106&utm_content=10.1038/s41593-024-01850-w
Save the Date! Dr. Sarah Tabrizi Community Lecture on February 19
HD-CARE and HDSA OC are cohosting a fantastic community lecture on February 19th with Dr. Sarah Tabrizi from University of College London. Register today: https://shorturl.at/Yj8uZ
PTC Therapeutics Enters into a Global License and $1B Collaboration Agreement with Novartis for PTC518 Huntington’s Disease Program
Read full release here: https://ir.ptcbio.com/news-releases/news-release-details/ptc-therapeutics-enters-global-license-and-collaboration
Leslie Thompson Speaks at 2024 HDF Gala
Never too late to post good news! Dr. Leslie Thompson along with Drs. Beverly Davidson and Jang-Ho Cha received a 2023 $1M Transformative Research Award taking strides towards treatments for…
Portillo Children Memorial Pickleball Tournament
Thank you to everyone who came out for our first Pickleball Tournament last Saturday, October 12th! We had a fantastic turn out and everyone brought so much great energy. Congrats…
Portillo Memorial Pickleball Tournament
HD-CARE is hosting our first Pickleball Tournament in Memory of the Portillo Children on October 12th! Any level of player is welcome to join as we will have multiple brackets…
New HD-BUZZ article out now on SURVEYOR study
The SURVEYOR study is a trial looking at cognitive changes in people with HD and tested short term safety of dalzanemdor. Read article here written by Dr. Leora Fox, edited…
Dimitri Poffé riding his bike giving visibility to Huntington’s disease – new documentary
An amazing man, Dimitri Poffé, took life by the horns after testing positive for Huntington's disease. He left France to go on an incredible ride across South America. This documentary exemplifies…
Huntington’s Disease Market Report
Read now the most updated, comprehensive report relating to market outlook, drug uptake, treatment scenario and epidemiology trends in Huntington's disease. https://www.einnews.com/pr_news/717150718/huntington-s-disease-market-report-2034-epidemiology-data-pipeline-therapies-latest-approvals-by-delveinsight