Charles Sabine is part of our HD community and delivered an outstanding Tedx Talk on his experience with Huntington's disease. Check out: The Unlimited Capability of Every Human | Charles…
Celebrate Huntington’s Disease Awareness Month this May
May is officially Huntington's Disease Awareness Month! Read all about the proclamation in this post: https://huntingtonstudygroup.org/hd-insights/vol27_hdawarenessmonth/
Run for HD-Care in the OC Marathon/5K!
New year means new opportunities to support UCI HD-CARE! OC Marathon May 6th & 7th 2023 is offering Kids Run, 5K Run, Half Marathon, and a Full Marathon, and we…
Run for a Claus 5K
Hello HD-CARE Friends and Family,Thank you to those who supported our Run for a Claus 5k fundraising event on December 10th. The funds raised from the run will support our HD community in making…
HD-CARE Symposium 2022
After a two year break due to COVID, HD-CARE again held its annual symposium at the Sue and Bill Gross Stem Cell Research Center on October 29. In a change…
Roche/Genentech plans for GENERATION HD2, a new Phase II clinical study
Roche and Genentech announce new clinical trial to begin early next year - Generation HD2 - to explore the use of tominersen in younger, less symptomatic HD patients. Click here…
YARR Leadership Academy applications are now open!
The EveryLife Foundation for Rare Diseases is excited to offer the return of the Young Adult Representatives of RDLA (YARR) Leadership Academy, a series of on-line courses offered to a select…
STRIDE-TRANSCEND Summer Symposium
Presentations – Posters – Networking – Lunch SATURDAY, JULY 23RD9:30 AM – 2:00 PMWCH Room #205 and 206 Keynote Speaker and Patient Advocate: Frances SaldañaPresentation Title: “Advocacy and Promoting Excellence…
Better than CRISPR? Another way to fix gene problems may be safer and more versatile
The following is an excerpt from a Science | AAAS article - read more here > "A flurry of studies in the past few years in mice suggests epigenome editing…
HD-CARE DOES THE OC MARATHON
By Frances SaldanaThe much anticipated 2022 Orange County Marathon on the weekend of May 1st turned out to be more than we could have hoped for!COVID kept us hunkered down…