SAGE therapeutics is a biopharmaceutical company with the mission of improving brain health. On 11/13/23, SAGE announcted that the US Food and Drug Administration (FDA) granted Orphan Drug Designation (ODD)…
New FDA Approved Drug for Chorea
The Huntington Study Group (HSG) shared that the Phase 3 KINECT-HD study resulted in FDA approval of valbenazine for treatment of chorea in Huntington's disease (HD). As a vesicular monoamine…
What is Huntington’s Disease? Find out in this Podcast!
Dr. Leslie Thompson, professor of Psychiatry & Human Behavior, Neurobiology and Behavior, and Chemistry, discusses Huntington's Disease and possible treatment strategies on the UCI MIND podcast. Check out the full…
Celebrate Huntington’s Disease Awareness Month this May
May is officially Huntington's Disease Awareness Month! Read all about the proclamation in this post: https://huntingtonstudygroup.org/hd-insights/vol27_hdawarenessmonth/
Prilenia Achieves Last Patient Last Visit in Phase 3 PROOF-HD Clinical Study for Huntington’s Disease
From Huntington Study Group: Prilenia Therapeutics B.V., a clinical stage biotechnology company, met a milestone that the last participant in PROOF-HD, a global Phase 3 study in Huntington’s disease (HD),…
The 988 Lifeline
988 is now active across the United States. This new, shorter phone number will make it easier for people to remember and access mental health crisis services. (Please note, the…
Surfing through life with the spirit of aloha
At Risk for Huntington's Diseasewww.curehd.blogspot.comDear friends in the fight against Huntington's disease,To persevere against neurological diseases such as HD and the aging we all face, I have learned that it…
Leslie Thompson, PhD named as Hereditary Disease Foundation Board Member
We are delighted to announce four new members of our Board of Directors, Lauren Baker Pinkus, Tacie Fox, C. Frank Bennett, and Leslie Thompson. Both Lauren and Tacie have extensive business…
Huntington’s disease: I’m taking a test that will reveal my future
Lisa didn’t know there was a history of Huntington’s disease in her family until she started experiencing symptoms. But if you do know there’s Huntington’s in your family, you can have a test from the age of 18 to see if you’ll also get it.
A TRIBUTE TO HD WARRIOR MOM’S
Covid-19 has consumed our entire lives, and for many, our livelihoods. This is a pandemic like we have never experienced in our lifetime, bringing out in many families fear, financial devastation, disabilities, isolation, suffering, and worst of all, loss of life. But through all this, the pandemic has uncovered emotions in many who rose to the occasion – a fight and stamina beyond human belief.