The Menifee City Disabilities Fair, sponsored by the city of Menifee November 8th, 2025: UCI HD-CARE board member Leslie Frias was there to raise awareness for Huntington Disease research at…
One of the highlights in 2025 for President Emeritus Frances Saldana - representing HD-CARE at the HSG Clinical Congress in Tennessee and promoting her book: Falling Angels - A Rhapsody…
HD Hero Sarah Tabrizi as One of Nature’s 10
Huntington disease researcher Dr. Sarah Tabrizi was named one of Nature's 10: Ten people who helped shape science in 2025 Full article: https://hdfoundation.org/wp-content/uploads/2025/12/Natures-10-2025.pdf?bbeml=tp-kOgnhSY2TESsVKneKkvHVw.jpYuoxtPSWEC1xT8c_1Qc5A.r_YWdi7howEK7tH93l09m-Q.lJ1AInFUl6EWc4ZKWCHoE7w
New Memoir: “FALLING ANGELS – A Rhapsody of DNA, And A Family At War With Huntington’s Disease”
Sheds Light on the Silent Struggle of Families Battling Huntington’s Disease (Temecula, CA) — In her deeply moving and unflinchingly honest memoir, FALLING ANGELS - A Rhapsody of DNA, and…
HD successfully treated for first time
BBC News reports on early clinical trial results of a gene therapy delivered directly into the brain to lower mutant huntingtin. Patients treated so far show signs of slower disease…
Oxytocin in Huntington’s Disease and ALS-FTD
The journal Frontiers in Molecular Neuroscience spotlights a comprehensive review titled “Oxytocin in Huntington’s disease and the spectrum of amyotrophic lateral sclerosis–frontotemporal dementia” by Bergh et al. The article shares…
May is Huntington’s disease awareness month!
Since 2012, HD-CARE has been supporting research led by Dr. Leslie Thompson at UCI and the UCI HD Clinic. HD-CARE was cofounded by Frances Saldana who lost her three beautiful…
In Memory of Pope Francis, the People’s Pope, and a Friend to the HD Community
Check out Dancing at the Vatican! An inspirational documentary telling the story of a seemingly impossible journey made by families bound by the same devastating, genetically inherited disease, Huntington's. Leaving…
uniQure Announces FDA Breakthrough Therapy Designation Granted to AMT-130 for the Treatment of Huntington’s Disease
Posting from uniQure press releases: April 17, 2025 ~ Breakthrough Therapy designation based on clinical evidence from Phase I/II trials showing meaningful slowing of disease progression ~ ~ Additional regulatory…
Want to learn more about HD?
Make sure to read these articles related to Huntington's disease if you want to learn more! "A Faustian bargain" in the Economist: https://www.economist.com/science-and-technology/2015/03/05/a-faustian-bargain "Is Huntington’s Disease an Unintended Consequence of…