Please join us for the HD-CARE Fall Symposium focused around Advocacy and Community! Speakers will include Dr. Lawrence Werlin (PDG IVF, fertility doctor), Gail Wiley from Aspire Products, Karmen Trzupek from Global…
Run for HD-Care in the OC Marathon/5K!
New year means new opportunities to support UCI HD-CARE! OC Marathon May 6th & 7th 2023 is offering Kids Run, 5K Run, Half Marathon, and a Full Marathon, and we…
Run for a Claus 5K
Hello HD-CARE Friends and Family,Thank you to those who supported our Run for a Claus 5k fundraising event on December 10th. The funds raised from the run will support our HD community in making…
HD-CARE Symposium 2022
After a two year break due to COVID, HD-CARE again held its annual symposium at the Sue and Bill Gross Stem Cell Research Center on October 29. In a change…
One-on-One Meetings with Medicine: Precision Health at the Intersection of Health and Neurodegenerative Disease
Join us for this hybrid community lecture featuring Leslie Thompson, PhD, and Anna Morenkova, MD. This lecture will be held both in-person at Sue & Bill Gross Stem Cell Research…
YARR Leadership Academy applications are now open!
The EveryLife Foundation for Rare Diseases is excited to offer the return of the Young Adult Representatives of RDLA (YARR) Leadership Academy, a series of on-line courses offered to a select…
STRIDE-TRANSCEND Summer Symposium
Presentations – Posters – Networking – Lunch SATURDAY, JULY 23RD9:30 AM – 2:00 PMWCH Room #205 and 206 Keynote Speaker and Patient Advocate: Frances SaldañaPresentation Title: “Advocacy and Promoting Excellence…
HD-CARE DOES THE OC MARATHON
By Frances SaldanaThe much anticipated 2022 Orange County Marathon on the weekend of May 1st turned out to be more than we could have hoped for!COVID kept us hunkered down…
Hereditary Disease Foundation Webinar: “Huntington: The Story of an Ancient and Innocent Gene.”
May is HD Awareness Month! Hereditary Disease Foundation's May Research Spotlight Seminar was “Huntington: The Story of an Ancient and Innocent Gene.” If you missed it or would like to…
