Presentations – Posters – Networking – Lunch SATURDAY, JULY 23RD9:30 AM – 2:00 PMWCH Room #205 and 206 Keynote Speaker and Patient Advocate: Frances SaldañaPresentation Title: “Advocacy and Promoting Excellence…
Better than CRISPR? Another way to fix gene problems may be safer and more versatile
The following is an excerpt from a Science | AAAS article - read more here > "A flurry of studies in the past few years in mice suggests epigenome editing…
Hereditary Disease Foundation Webinar: “Huntington: The Story of an Ancient and Innocent Gene.”
May is HD Awareness Month! Hereditary Disease Foundation's May Research Spotlight Seminar was “Huntington: The Story of an Ancient and Innocent Gene.” If you missed it or would like to…
Hybrid Community Lecture
Join us on Tuesday, May 10, 2022, at 7 PM PT, for this hybrid event as Craig Walsh, PhD discusses T Cells and neurodegenerative diseases. You may attend this lecture online or…
Sports reporter Allie LaForce and husband, MLB pitcher Joe Smith, discuss efforts to helping couples affected by Huntington’s disease
Turner Sports sideline reporter Allie LaForce has been open and candid about her journey to have a baby, using social media to document the highs and the lows—including a miscarriage.…
Family Planning and Research Participation
HD-CARE board member and UCI researcher Dr. Sarah Hernandez recently published an article about family planning and research participation. Read more about it here.
PROP 14 PASSAGE PRESS RELEASE
California Voters Deliver a Victory for Proposition 14 The Passage of Proposition 14 Underscores Californians’ Commitment to Continue Investments in the Discovery of Groundbreaking Treatments and Cures for Chronic Diseases…
Pain Management Often Neglected in Huntington’s, Researchers Say
The uncontrolled jerking and writhing movements associated with Huntington’s disease are well known, along with cognitive decline. But doctors who treat Huntington’s patients are far less familiar with the pain and depression their patients endure almost constantly.
HD Insights is Now Available
For Immediate Release: May 23, 2019 The Huntington Study Group (HSG) is excited to announce that the spring 2019 edition (Vol. 21) of HD Insights is now available in print and online.…