Leslie Thompson, PhD named as Hereditary Disease Foundation Board Member
We are delighted to announce four new members of our Board of Directors, Lauren Baker Pinkus, Tacie Fox, C. Frank Bennett, and Leslie Thompson. Both Lauren and Tacie have extensive business…
#RAREis Scholarship Fund
SCHOLARSHIP OPPORTUNITY! The scholarship application is now officially open at https://rarescholarship.orgHere's some great news for or HD community! The Everylife Foundation will be awarding up to 53 $5,000 scholarships for the…
Sports reporter Allie LaForce and husband, MLB pitcher Joe Smith, discuss efforts to helping couples affected by Huntington’s disease
Turner Sports sideline reporter Allie LaForce has been open and candid about her journey to have a baby, using social media to document the highs and the lows—including a miscarriage.…
Pain Management Often Neglected in Huntington’s, Researchers Say
The uncontrolled jerking and writhing movements associated with Huntington’s disease are well known, along with cognitive decline. But doctors who treat Huntington’s patients are far less familiar with the pain and depression their patients endure almost constantly.
OC MARATHON – CHARITY SPOTLIGHT – HD Care
The OC Marathon wrote a very nice spotlight piece on HDCare. Read the whole article here.
Huntington’s disease: I’m taking a test that will reveal my future
BBC News video that looks at Huntington's Disease. Watch the full video here
Breaking News: Exciting Results of HDF-Supported Research Published in New England Journal of Medicine
A human trial that focuses on lowering the level of the Huntington protein in the nervous system, has proved successful. Read more here
CHALLENGING HUNTINGTON’S DISEASE
A lovely write up and tribute about the work HDCare is doing for the Huntington's community on Huff Post by Don C. Reed, titled: Benefit #4 (of 71) of the California…