Charles Sabine is part of our HD community and delivered an outstanding Tedx Talk on his experience with Huntington's disease. Check out: The Unlimited Capability of Every Human | Charles…
Join us for Sounds of the Bayou!
Register today! HD-Care invites you to our summer fundraiser on Saturday September 30, 2023 1-4pm at Campus Jax. Live music and "Live Ask" opportunity to support HD research and patient…
Celebrate Huntington’s Disease Awareness Month this May
May is officially Huntington's Disease Awareness Month! Read all about the proclamation in this post: https://huntingtonstudygroup.org/hd-insights/vol27_hdawarenessmonth/
Celebrating 30 years since the discovery of the HD mutant gene!
30 years ago, the Huntington's Disease Collaborative Research Group identified the Huntington's disease (HD) mutant gene. By examining 75 disease families, they found a trinucleotide (CAG) repeat that is expanded…
How Huntington’s Disease Affects Different Neurons
Brand new publication of 2023 highlighting how different types of neurons are affected in Huntington’s disease in Neuroscience News. Paper was originally published in Nature Communications from the labs of Dr. Manolis Kellis, Dr. Myriam Heiman and Dr. Ann Graybiel.
Run for a Claus 5K
Hello HD-CARE Friends and Family,Thank you to those who supported our Run for a Claus 5k fundraising event on December 10th. The funds raised from the run will support our HD community in making…
HD-CARE Symposium 2022
After a two year break due to COVID, HD-CARE again held its annual symposium at the Sue and Bill Gross Stem Cell Research Center on October 29. In a change…
Roche/Genentech plans for GENERATION HD2, a new Phase II clinical study
Roche and Genentech announce new clinical trial to begin early next year - Generation HD2 - to explore the use of tominersen in younger, less symptomatic HD patients. Click here…
YARR Leadership Academy applications are now open!
The EveryLife Foundation for Rare Diseases is excited to offer the return of the Young Adult Representatives of RDLA (YARR) Leadership Academy, a series of on-line courses offered to a select…
STRIDE-TRANSCEND Summer Symposium
Presentations – Posters – Networking – Lunch SATURDAY, JULY 23RD9:30 AM – 2:00 PMWCH Room #205 and 206 Keynote Speaker and Patient Advocate: Frances SaldañaPresentation Title: “Advocacy and Promoting Excellence…