Charles Sabine is part of our HD community and delivered an outstanding Tedx Talk on his experience with Huntington's disease. Check out: The Unlimited Capability of Every Human | Charles…
Run for a Claus 5K
Hello HD-CARE Friends and Family,Thank you to those who supported our Run for a Claus 5k fundraising event on December 10th. The funds raised from the run will support our HD community in making…
HD-CARE Symposium 2022
After a two year break due to COVID, HD-CARE again held its annual symposium at the Sue and Bill Gross Stem Cell Research Center on October 29. In a change…
Roche/Genentech plans for GENERATION HD2, a new Phase II clinical study
Roche and Genentech announce new clinical trial to begin early next year - Generation HD2 - to explore the use of tominersen in younger, less symptomatic HD patients. Click here…
YARR Leadership Academy applications are now open!
The EveryLife Foundation for Rare Diseases is excited to offer the return of the Young Adult Representatives of RDLA (YARR) Leadership Academy, a series of on-line courses offered to a select…
STRIDE-TRANSCEND Summer Symposium
Presentations – Posters – Networking – Lunch SATURDAY, JULY 23RD9:30 AM – 2:00 PMWCH Room #205 and 206 Keynote Speaker and Patient Advocate: Frances SaldañaPresentation Title: “Advocacy and Promoting Excellence…
Better than CRISPR? Another way to fix gene problems may be safer and more versatile
The following is an excerpt from a Science | AAAS article - read more here > "A flurry of studies in the past few years in mice suggests epigenome editing…
HD-CARE DOES THE OC MARATHON
By Frances SaldanaThe much anticipated 2022 Orange County Marathon on the weekend of May 1st turned out to be more than we could have hoped for!COVID kept us hunkered down…
Hereditary Disease Foundation Webinar: “Huntington: The Story of an Ancient and Innocent Gene.”
May is HD Awareness Month! Hereditary Disease Foundation's May Research Spotlight Seminar was “Huntington: The Story of an Ancient and Innocent Gene.” If you missed it or would like to…
Surfing through life with the spirit of aloha
At Risk for Huntington's Diseasewww.curehd.blogspot.comDear friends in the fight against Huntington's disease,To persevere against neurological diseases such as HD and the aging we all face, I have learned that it…