May is officially Huntington's Disease Awareness Month! Read all about the proclamation in this post: https://huntingtonstudygroup.org/hd-insights/vol27_hdawarenessmonth/
Prilenia Achieves Last Patient Last Visit in Phase 3 PROOF-HD Clinical Study for Huntington’s Disease
From Huntington Study Group: Prilenia Therapeutics B.V., a clinical stage biotechnology company, met a milestone that the last participant in PROOF-HD, a global Phase 3 study in Huntington’s disease (HD),…
The 988 Lifeline
988 is now active across the United States. This new, shorter phone number will make it easier for people to remember and access mental health crisis services. (Please note, the…
Surfing through life with the spirit of aloha
At Risk for Huntington's Diseasewww.curehd.blogspot.comDear friends in the fight against Huntington's disease,To persevere against neurological diseases such as HD and the aging we all face, I have learned that it…
Leslie Thompson, PhD named as Hereditary Disease Foundation Board Member
We are delighted to announce four new members of our Board of Directors, Lauren Baker Pinkus, Tacie Fox, C. Frank Bennett, and Leslie Thompson. Both Lauren and Tacie have extensive business…
Huntington’s disease: I’m taking a test that will reveal my future
Lisa didn’t know there was a history of Huntington’s disease in her family until she started experiencing symptoms. But if you do know there’s Huntington’s in your family, you can have a test from the age of 18 to see if you’ll also get it.
A TRIBUTE TO HD WARRIOR MOM’S
Covid-19 has consumed our entire lives, and for many, our livelihoods. This is a pandemic like we have never experienced in our lifetime, bringing out in many families fear, financial devastation, disabilities, isolation, suffering, and worst of all, loss of life. But through all this, the pandemic has uncovered emotions in many who rose to the occasion – a fight and stamina beyond human belief.
My Huntington’s Disease Sister
and a hero who strives for the unthinkable read more on the CureHD blog here.
Leslie M. Thompson, Ph.D – UCI Big Ideas Challenge Winner
Congratulations to Dr. Leslie M. Thompson for being a Big Ideas Challenge winner. Leslie heads the HD research lab at UCI and is on the HDCare Scientific Advisory Board. Please…
HDCare Board Member Sarah Hernandez Awarded the Carl W. Cotman Scholar’s Award
The Carl W. Cotman Scholar's Award is a prestigious award in honor of UCI MIND's founding Director, Dr. Carl Cotman. The award is given to a postdoctoral trainee who has…