Methods to Identify What Is Important to Patients Guidance for Industry, Food and Drug Administration Staff, and Other Stakeholders. Continue reading at FDA.org
Roche Restarts Redesigned Phase 3 Huntington’s Disease Trial
Read more about this at the At Risk for Huntington's Disease Blog
HD Insights is Now Available
For Immediate Release: May 23, 2019 The Huntington Study Group (HSG) is excited to announce that the spring 2019 edition (Vol. 21) of HD Insights is now available in print and online.…
A Hope for Huntington’s
Sarah Hernandez ’15 (PhD) hunts for a cure with a personal vendetta. Read the full article here.
Experimental Drug For Huntington’s Disease Jams Malfunctioning Gene
NPR’s All Things Considered discusses latest HD clinical trial on May 11. Listen or read more here.
Breaking News: Exciting Results of HDF-Supported Research Published in New England Journal of Medicine
A human trial that focuses on lowering the level of the Huntington protein in the nervous system, has proved successful. Read more here
Leslie Thompson gets $6 million CIRM grant to advance Huntington’s disease treatments
Great news from UCI today, one of our esteemed scientific advisors was awarded a grant to help further Huntington's disease treatments. Read more directly from UCI News. Click here
Understanding Drug Development
Rare University offers a free 12-lesson course designed specifically for rare disease patients and advocates. The course will explore the following: 1. An introduction to the drug development process and…
FDA Orphan Designation Moves Vybion’s Huntington’s Therapy Closer To Clinical Trial
Read the most recent news on the Vybion's Huntington's Therapy from the Huntington's Disease News.