30 years ago, the Huntington's Disease Collaborative Research Group identified the Huntington's disease (HD) mutant gene. By examining 75 disease families, they found a trinucleotide (CAG) repeat that is expanded…
How Huntington’s Disease Affects Different Neurons
Brand new publication of 2023 highlighting how different types of neurons are affected in Huntington’s disease in Neuroscience News. Paper was originally published in Nature Communications from the labs of Dr. Manolis Kellis, Dr. Myriam Heiman and Dr. Ann Graybiel.
HD-CARE Symposium 2022
After a two year break due to COVID, HD-CARE again held its annual symposium at the Sue and Bill Gross Stem Cell Research Center on October 29. In a change…
Prolonged Grief Disorder, A Novel Diagnosis
Contributors: Ken Kast and Frances Saldaña HD-CARE Board Members Prolonged Grief is a novel diagnosis. It was officially included in the 2021 update to The Diagnostic and Statistical Manual of Mental Disorders,…
Roche/Genentech plans for GENERATION HD2, a new Phase II clinical study
Roche and Genentech announce new clinical trial to begin early next year - Generation HD2 - to explore the use of tominersen in younger, less symptomatic HD patients. Click here…
American Psychiatric Association: Prolonged Grief Disorder
Grief is a natural response to the loss of a loved one. For most people, the symptoms of grief begin to decrease over time. However, for a small group of…
Better than CRISPR? Another way to fix gene problems may be safer and more versatile
The following is an excerpt from a Science | AAAS article - read more here > "A flurry of studies in the past few years in mice suggests epigenome editing…
HD-CARE DOES THE OC MARATHON
By Frances SaldanaThe much anticipated 2022 Orange County Marathon on the weekend of May 1st turned out to be more than we could have hoped for!COVID kept us hunkered down…
Hybrid Community Lecture
Join us on Tuesday, May 10, 2022, at 7 PM PT, for this hybrid event as Craig Walsh, PhD discusses T Cells and neurodegenerative diseases. You may attend this lecture online or…
Sports reporter Allie LaForce and husband, MLB pitcher Joe Smith, discuss efforts to helping couples affected by Huntington’s disease
Turner Sports sideline reporter Allie LaForce has been open and candid about her journey to have a baby, using social media to document the highs and the lows—including a miscarriage.…