Roche and Genentech announce new clinical trial to begin early next year - Generation HD2 - to explore the use of tominersen in younger, less symptomatic HD patients. Click here…
American Psychiatric Association: Prolonged Grief Disorder
Grief is a natural response to the loss of a loved one. For most people, the symptoms of grief begin to decrease over time. However, for a small group of…
Better than CRISPR? Another way to fix gene problems may be safer and more versatile
The following is an excerpt from a Science | AAAS article - read more here > "A flurry of studies in the past few years in mice suggests epigenome editing…
HD-CARE DOES THE OC MARATHON
By Frances SaldanaThe much anticipated 2022 Orange County Marathon on the weekend of May 1st turned out to be more than we could have hoped for!COVID kept us hunkered down…
Hybrid Community Lecture
Join us on Tuesday, May 10, 2022, at 7 PM PT, for this hybrid event as Craig Walsh, PhD discusses T Cells and neurodegenerative diseases. You may attend this lecture online or…
Sports reporter Allie LaForce and husband, MLB pitcher Joe Smith, discuss efforts to helping couples affected by Huntington’s disease
Turner Sports sideline reporter Allie LaForce has been open and candid about her journey to have a baby, using social media to document the highs and the lows—including a miscarriage.…
Family Planning and Research Participation
HD-CARE board member and UCI researcher Dr. Sarah Hernandez recently published an article about family planning and research participation. Read more about it here.
PROP 14 PASSAGE PRESS RELEASE
California Voters Deliver a Victory for Proposition 14 The Passage of Proposition 14 Underscores Californians’ Commitment to Continue Investments in the Discovery of Groundbreaking Treatments and Cures for Chronic Diseases…
Pain Management Often Neglected in Huntington’s, Researchers Say
The uncontrolled jerking and writhing movements associated with Huntington’s disease are well known, along with cognitive decline. But doctors who treat Huntington’s patients are far less familiar with the pain and depression their patients endure almost constantly.
Huntington’s disease: I’m taking a test that will reveal my future
BBC News video that looks at Huntington's Disease. Watch the full video here