By Frances SaldanaThe much anticipated 2022 Orange County Marathon on the weekend of May 1st turned out to be more than we could have hoped for!COVID kept us hunkered down…
Hereditary Disease Foundation Webinar: “Huntington: The Story of an Ancient and Innocent Gene.”
May is HD Awareness Month! Hereditary Disease Foundation's May Research Spotlight Seminar was “Huntington: The Story of an Ancient and Innocent Gene.” If you missed it or would like to…
Surfing through life with the spirit of aloha
At Risk for Huntington's Diseasewww.curehd.blogspot.comDear friends in the fight against Huntington's disease,To persevere against neurological diseases such as HD and the aging we all face, I have learned that it…
Leslie Thompson, PhD named as Hereditary Disease Foundation Board Member
We are delighted to announce four new members of our Board of Directors, Lauren Baker Pinkus, Tacie Fox, C. Frank Bennett, and Leslie Thompson. Both Lauren and Tacie have extensive business…
Hybrid Community Lecture
Join us on Tuesday, May 10, 2022, at 7 PM PT, for this hybrid event as Craig Walsh, PhD discusses T Cells and neurodegenerative diseases. You may attend this lecture online or…
#RAREis Scholarship Fund
SCHOLARSHIP OPPORTUNITY! The scholarship application is now officially open at https://rarescholarship.orgHere's some great news for or HD community! The Everylife Foundation will be awarding up to 53 $5,000 scholarships for the…
Sports reporter Allie LaForce and husband, MLB pitcher Joe Smith, discuss efforts to helping couples affected by Huntington’s disease
Turner Sports sideline reporter Allie LaForce has been open and candid about her journey to have a baby, using social media to document the highs and the lows—including a miscarriage.…
Family Planning and Research Participation
HD-CARE board member and UCI researcher Dr. Sarah Hernandez recently published an article about family planning and research participation. Read more about it here.
HDSA Expands Centers of Excellence Program to Fifty-Four Sites
The Huntington’s Disease Society of America (HDSA) announced that fifty-four outstanding Huntington’s disease care facilities are being awarded the designation of HDSA Centers of Excellence for 2021. The HDSA Centers…