988 is now active across the United States. This new, shorter phone number will make it easier for people to remember and access mental health crisis services. (Please note, the…
YARR Leadership Academy applications are now open!
The EveryLife Foundation for Rare Diseases is excited to offer the return of the Young Adult Representatives of RDLA (YARR) Leadership Academy, a series of on-line courses offered to a select…
STRIDE-TRANSCEND Summer Symposium
Presentations – Posters – Networking – Lunch SATURDAY, JULY 23RD9:30 AM – 2:00 PMWCH Room #205 and 206 Keynote Speaker and Patient Advocate: Frances SaldañaPresentation Title: “Advocacy and Promoting Excellence…
Better than CRISPR? Another way to fix gene problems may be safer and more versatile
The following is an excerpt from a Science | AAAS article - read more here > "A flurry of studies in the past few years in mice suggests epigenome editing…
HD-CARE DOES THE OC MARATHON
By Frances SaldanaThe much anticipated 2022 Orange County Marathon on the weekend of May 1st turned out to be more than we could have hoped for!COVID kept us hunkered down…
Hereditary Disease Foundation Webinar: “Huntington: The Story of an Ancient and Innocent Gene.”
May is HD Awareness Month! Hereditary Disease Foundation's May Research Spotlight Seminar was “Huntington: The Story of an Ancient and Innocent Gene.” If you missed it or would like to…
Surfing through life with the spirit of aloha
At Risk for Huntington's Diseasewww.curehd.blogspot.comDear friends in the fight against Huntington's disease,To persevere against neurological diseases such as HD and the aging we all face, I have learned that it…
Leslie Thompson, PhD named as Hereditary Disease Foundation Board Member
We are delighted to announce four new members of our Board of Directors, Lauren Baker Pinkus, Tacie Fox, C. Frank Bennett, and Leslie Thompson. Both Lauren and Tacie have extensive business…
Hybrid Community Lecture
Join us on Tuesday, May 10, 2022, at 7 PM PT, for this hybrid event as Craig Walsh, PhD discusses T Cells and neurodegenerative diseases. You may attend this lecture online or…