In the UCI MIND quarterly newsletter, HD-CARE is celebrated as 10 years as a non-profit organization! Check out the article along with other exciting news from UCI: https://mind.uci.edu/mind-matters-quarterly-newsletter-winter-2023/
Prilenia Achieves Last Patient Last Visit in Phase 3 PROOF-HD Clinical Study for Huntington’s Disease
From Huntington Study Group: Prilenia Therapeutics B.V., a clinical stage biotechnology company, met a milestone that the last participant in PROOF-HD, a global Phase 3 study in Huntington’s disease (HD),…
Celebrating 30 years since the discovery of the HD mutant gene!
30 years ago, the Huntington's Disease Collaborative Research Group identified the Huntington's disease (HD) mutant gene. By examining 75 disease families, they found a trinucleotide (CAG) repeat that is expanded…
Remembering Kevin McCormack
We are devastated to learn that a member of our community and Director of Patient Advocacy of the California Institute of Regenerative Medicine (CIRM), Kevin McCormack, passed away three months…
Run for HD-Care in the OC Marathon/5K!
New year means new opportunities to support UCI HD-CARE! OC Marathon May 6th & 7th 2023 is offering Kids Run, 5K Run, Half Marathon, and a Full Marathon, and we…
How Huntington’s Disease Affects Different Neurons
Brand new publication of 2023 highlighting how different types of neurons are affected in Huntington’s disease in Neuroscience News. Paper was originally published in Nature Communications from the labs of Dr. Manolis Kellis, Dr. Myriam Heiman and Dr. Ann Graybiel.
Run for a Claus 5K
Hello HD-CARE Friends and Family,Thank you to those who supported our Run for a Claus 5k fundraising event on December 10th. The funds raised from the run will support our HD community in making…
HD-CARE Symposium 2022
After a two year break due to COVID, HD-CARE again held its annual symposium at the Sue and Bill Gross Stem Cell Research Center on October 29. In a change…
Prolonged Grief Disorder, A Novel Diagnosis
Contributors: Ken Kast and Frances Saldaña HD-CARE Board Members Prolonged Grief is a novel diagnosis. It was officially included in the 2021 update to The Diagnostic and Statistical Manual of Mental Disorders,…
Roche/Genentech plans for GENERATION HD2, a new Phase II clinical study
Roche and Genentech announce new clinical trial to begin early next year - Generation HD2 - to explore the use of tominersen in younger, less symptomatic HD patients. Click here…