Please join us for the HD-CARE Fall Symposium focused around Advocacy and Community! Speakers will include Dr. Lawrence Werlin (PDG IVF, fertility doctor), Gail Wiley from Aspire Products, Karmen Trzupek from Global…
PTC Therapeutics Enters into a Global License and $1B Collaboration Agreement with Novartis for PTC518 Huntington’s Disease Program
Read full release here: https://ir.ptcbio.com/news-releases/news-release-details/ptc-therapeutics-enters-global-license-and-collaboration
Leslie Thompson Speaks at 2024 HDF Gala
Never too late to post good news! Dr. Leslie Thompson along with Drs. Beverly Davidson and Jang-Ho Cha received a 2023 $1M Transformative Research Award taking strides towards treatments for…
Portillo Children Memorial Pickleball Tournament
Thank you to everyone who came out for our first Pickleball Tournament last Saturday, October 12th! We had a fantastic turn out and everyone brought so much great energy. Congrats…
Portillo Memorial Pickleball Tournament
HD-CARE is hosting our first Pickleball Tournament in Memory of the Portillo Children on October 12th! Any level of player is welcome to join as we will have multiple brackets…
New HD-BUZZ article out now on SURVEYOR study
The SURVEYOR study is a trial looking at cognitive changes in people with HD and tested short term safety of dalzanemdor. Read article here written by Dr. Leora Fox, edited…
Dimitri Poffé riding his bike giving visibility to Huntington’s disease – new documentary
An amazing man, Dimitri Poffé, took life by the horns after testing positive for Huntington's disease. He left France to go on an incredible ride across South America. This documentary exemplifies…
Huntington’s Disease Market Report
Read now the most updated, comprehensive report relating to market outlook, drug uptake, treatment scenario and epidemiology trends in Huntington's disease. https://www.einnews.com/pr_news/717150718/huntington-s-disease-market-report-2034-epidemiology-data-pipeline-therapies-latest-approvals-by-delveinsight
Watch “Q&A with HDBuzz | Huntington’s disease” featuring Dr. Sarah Hernandez
Our previous HD-CARE president, Dr. Sarah Hernandez, is featured on an HDBuzz Research Update. Watch today! https://www.youtube.com/watch?v=iEmA8FkM010
Dr. Sarah Tabrizi elected as Fellow of the Royal Society
Dr. Sarah Tabrizi is Director of the UCL Huntington’s Disease Centre and Joint-Head of the Department of Neurodegenerative Disease, at the UCL Queen Square Institute of Neurology. Sarah’s multidisciplinary research…