After a two year break due to COVID, HD-CARE again held its annual symposium at the Sue and Bill Gross Stem Cell Research Center on October 29. In a change…
Roche/Genentech plans for GENERATION HD2, a new Phase II clinical study
Roche and Genentech announce new clinical trial to begin early next year - Generation HD2 - to explore the use of tominersen in younger, less symptomatic HD patients. Click here…
One-on-One Meetings with Medicine: Precision Health at the Intersection of Health and Neurodegenerative Disease
Join us for this hybrid community lecture featuring Leslie Thompson, PhD, and Anna Morenkova, MD. This lecture will be held both in-person at Sue & Bill Gross Stem Cell Research…
Better than CRISPR? Another way to fix gene problems may be safer and more versatile
The following is an excerpt from a Science | AAAS article - read more here > "A flurry of studies in the past few years in mice suggests epigenome editing…
HDSA Expands Centers of Excellence Program to Fifty-Four Sites
The Huntington’s Disease Society of America (HDSA) announced that fifty-four outstanding Huntington’s disease care facilities are being awarded the designation of HDSA Centers of Excellence for 2021. The HDSA Centers…
Pain Management Often Neglected in Huntington’s, Researchers Say
The uncontrolled jerking and writhing movements associated with Huntington’s disease are well known, along with cognitive decline. But doctors who treat Huntington’s patients are far less familiar with the pain and depression their patients endure almost constantly.
Huntington’s disease: I’m taking a test that will reveal my future
BBC News video that looks at Huntington's Disease. Watch the full video here
HD Insights is Now Available
For Immediate Release: May 23, 2019 The Huntington Study Group (HSG) is excited to announce that the spring 2019 edition (Vol. 21) of HD Insights is now available in print and online.…
Experimental Drug For Huntington’s Disease Jams Malfunctioning Gene
NPR’s All Things Considered discusses latest HD clinical trial on May 11. Listen or read more here.
Understanding Drug Development
Rare University offers a free 12-lesson course designed specifically for rare disease patients and advocates. The course will explore the following: 1. An introduction to the drug development process and…