and a hero who strives for the unthinkable read more on the CureHD blog here.
HD Insights is Now Available
For Immediate Release: May 23, 2019 The Huntington Study Group (HSG) is excited to announce that the spring 2019 edition (Vol. 21) of HD Insights is now available in print and online.…
A Hope for Huntington’s
Sarah Hernandez ’15 (PhD) hunts for a cure with a personal vendetta. Read the full article here.
Experimental Drug For Huntington’s Disease Jams Malfunctioning Gene
NPR’s All Things Considered discusses latest HD clinical trial on May 11. Listen or read more here.
Longest Journey
On April 10 HD-CARE sponsored the presentation of The Longest Journey at the Innovation Center at UCI. The film is a documentary about a family’s efforts to raise awareness of and…
Breaking News: Exciting Results of HDF-Supported Research Published in New England Journal of Medicine
A human trial that focuses on lowering the level of the Huntington protein in the nervous system, has proved successful. Read more here
Leslie Thompson gets $6 million CIRM grant to advance Huntington’s disease treatments
Great news from UCI today, one of our esteemed scientific advisors was awarded a grant to help further Huntington's disease treatments. Read more directly from UCI News. Click here
Understanding Drug Development
Rare University offers a free 12-lesson course designed specifically for rare disease patients and advocates. The course will explore the following: 1. An introduction to the drug development process and…
FDA Orphan Designation Moves Vybion’s Huntington’s Therapy Closer To Clinical Trial
Read the most recent news on the Vybion's Huntington's Therapy from the Huntington's Disease News.
Roche Phase 3 Clinical Trial for Huntington’s Disease Gene-Silencing Drug to Enroll Volunteers – Early 2019
Dear friends in the fight against Huntington's disease, Pharma giant Roche expects to start enrolling subjects worldwide (including the U.S.) in early 2019 in its historic Phase 3 clinical trial…