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hdcareoc@gmail.com (714) 393-8095 845 Health Sciences Rd, Room #4100 Irvine, CA 92617

Huntington's Disease Community Advocacy, Research & Education

  • Home
  • HD-Care
    • Board of Directors
    • Scientific Advisory Board
    • What is HD?
    • Letter from the Scientists
    • Stories
  • Advocacy
  • HD Clinic
    • Enroll HD
  • News
    • Events
    • Videos
    • OC Marathon
  • Resources
    • HD Road Map
  • Gallery
  • Clinical Trials
  • Donate
    • Portillo Children Memorial Fund
  • Contact Us

Category: News

Home>News>News (Page 3)

Watch “Q&A with HDBuzz | Huntington’s disease” featuring Dr. Sarah Hernandez

05/28/2024 Mara Burns

Our previous HD-CARE president, Dr. Sarah Hernandez, is featured on an HDBuzz Research Update. Watch today! https://www.youtube.com/watch?v=iEmA8FkM010

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Dr. Sarah Tabrizi elected as Fellow of the Royal Society

05/19/2024 Mara Burns

Dr. Sarah Tabrizi is Director of the UCL Huntington’s Disease Centre and Joint-Head of the Department of Neurodegenerative Disease, at the UCL Queen Square Institute of Neurology. Sarah’s multidisciplinary research…

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Charles Sabine Tedx BATH Talk

03/04/2024 Mara Burns

Charles Sabine is part of our HD community and delivered an outstanding Tedx Talk on his experience with Huntington's disease. Check out: The Unlimited Capability of Every Human | Charles…

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Unravelling the role of huntingtin: from neurodevelopment to neurodegeneration 

12/27/2023 Mara Burns

The journal, Brain, highlights a recent paper on "Genetic topography and cortical cell loss in Huntington's disease link development and neurodegeneration". A review by Schultz et al., succinctly summarizes intriguing…

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Amazing year for the UCI Sue and Bill Gross Stem Cell Research Center!

12/13/2023 Mara Burns

HD-CARE supports the UCI Thompson Lab, which is located in the UCI Sue and Bill Gross Stem Cell Research Center (SCRC). The SCRC thanked us for making 2023 an incredible…

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Huntington Study Group® and Roche Collaborate on Generation HD2 Study

12/13/2023 Mara Burns

Exciting new collaboration between the Huntington's Study Group (HSG) and Roche therapeutics. HSG will advise Roche on recruitment and enrollment of the needs of GENERATION HD2. This work will collectively…

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SAGE Therapeutics announces FDA approved drug for HD cognitive therapy

11/13/2023 Mara Burns

SAGE therapeutics is a biopharmaceutical company with the mission of improving brain health. On 11/13/23, SAGE announcted that the US Food and Drug Administration (FDA) granted Orphan Drug Designation (ODD)…

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Youthful competitors: young brain cells oust the old

09/06/2023 Elizabeth Meredith

 A recent publication that has garnered a lot of press looked at the effects of replacing cells in the brains of mice that model HD - with surprising findings. The…

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New FDA Approved Drug for Chorea

08/21/2023 Mara Burns

The Huntington Study Group (HSG) shared that the Phase 3 KINECT-HD study resulted in FDA approval of valbenazine for treatment of chorea in Huntington's disease (HD). As a vesicular monoamine…

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Join us for Sounds of the Bayou!

06/30/2023 Mara Burns

Register today! HD-Care invites you to our summer fundraiser on Saturday September 30, 2023 1-4pm at Campus Jax. Live music and "Live Ask" opportunity to support HD research and patient…

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