Huntington's Disease Community Advocacy, Research & Education
Congrats to the Thompson Lab on their recent discovery published in Nature Neuroscience discovering molecular mechanisms driving RNA processing defects in Huntington's disease! Read here: https://www.nature.com/articles/s41593-024-01850-w?utm_source=rct_congratemailt&utm_medium=email&utm_campaign=oa_20250106&utm_content=10.1038/s41593-024-01850-w
HD-CARE and HDSA OC are cohosting a fantastic community lecture on February 19th with Dr. Sarah Tabrizi from University of College London. Register today: https://shorturl.at/Yj8uZ
Read full release here: https://ir.ptcbio.com/news-releases/news-release-details/ptc-therapeutics-enters-global-license-and-collaboration
Never too late to post good news! Dr. Leslie Thompson along with Drs. Beverly Davidson and Jang-Ho Cha received a 2023 $1M Transformative Research Award taking strides towards treatments for…
Thank you to everyone who came out for our first Pickleball Tournament last Saturday, October 12th! We had a fantastic turn out and everyone brought so much great energy. Congrats…
HD-CARE is hosting our first Pickleball Tournament in Memory of the Portillo Children on October 12th! Any level of player is welcome to join as we will have multiple brackets…
Please join us for the HD-CARE Fall Symposium focused around Advocacy and Community! Speakers will include Dr. Lawrence Werlin (PDG IVF, fertility doctor), Gail Wiley from Aspire Products, Karmen Trzupek from Global…
The SURVEYOR study is a trial looking at cognitive changes in people with HD and tested short term safety of dalzanemdor. Read article here written by Dr. Leora Fox, edited…
An amazing man, Dimitri Poffé, took life by the horns after testing positive for Huntington's disease. He left France to go on an incredible ride across South America. This documentary exemplifies…
Read now the most updated, comprehensive report relating to market outlook, drug uptake, treatment scenario and epidemiology trends in Huntington's disease. https://www.einnews.com/pr_news/717150718/huntington-s-disease-market-report-2034-epidemiology-data-pipeline-therapies-latest-approvals-by-delveinsight