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(714) 393-8095[email protected]
845 Health Sciences Rd, Room #4100 Irvine, CA 92617
[email protected] (714) 393-8095 845 Health Sciences Rd, Room #4100 Irvine, CA 92617

Huntington's Disease Community Advocacy, Research & Education

  • Home
  • HD-Care
    • Board of Directors
    • Scientific Advisory Board
    • What is HD?
    • Letter from the Scientists
    • Stories
  • Advocacy
  • HD Clinic
    • Enroll HD
  • News
    • Events
    • Videos
    • OC Marathon
  • Resources
  • Gallery
  • Clinical Trials
  • Donate
    • Portillo Children Memorial Fund
  • Contact Us

Month: March 2023

Home>2023>March

Prilenia Achieves Last Patient Last Visit in Phase 3 PROOF-HD Clinical Study for Huntington’s Disease

03/29/2023 Mara Burns

From Huntington Study Group: Prilenia Therapeutics B.V., a clinical stage biotechnology company, met a milestone that the last participant in PROOF-HD, a global Phase 3 study in Huntington’s disease (HD),…

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Celebrating 30 years since the discovery of the HD mutant gene!

03/27/2023 Mara Burns

30 years ago, the Huntington's Disease Collaborative Research Group identified the Huntington's disease (HD) mutant gene. By examining 75 disease families, they found a trinucleotide (CAG) repeat that is expanded…

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Remembering Kevin McCormack

03/25/2023 Mara Burns

We are devastated to learn that a member of our community and Director of Patient Advocacy of the California Institute of Regenerative Medicine (CIRM), Kevin McCormack, passed away three months…

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