Huntington’s Disease Services Flyer

Huntington’s disease is an inherited disorder that results in motor and cognitive symptoms that are progressive over time. At UCI Health, we specialize in the expert assessment, diagnosis and intervention in Huntington’s disease. Our team of fellowship-trained physicians and clinical staff are here to care for you and your family throughout all stages of Huntington’s disease. View the flyer and learn more >

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EveryLife Foundation for Rare Diseases Launches Young Adult Leadership Academy

The Everylife Foundation has launched the Young Adult Leadership Academy.  The Academy will equip young advocates with the skills and knowledge necessary to be successful in professional patient representative roles.  This is critical in providing training for the next generation of HD patient advocates.

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Trauma Intervention Program (TIP)

OC: 949-614-6333 | https://tiporangecounty.org

Riverside: 951-698-2453 | https://www.tipswrc.org

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ICD Code Roadmap Resource Guide

https://everylifefoundation.org/icd-code-roadmap

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ASGCT Patient-Friendly Resources

Gene therapy approaches for Huntington’s disease

Gene Therapy Basics

Clinical Trials Process

Clinical Trials Finder

Gene Therapy – Then, Now, Later Webinar

The Science Behind Gene Therapy Webinar

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Huntington’s Disease Resource by Genentech

Understanding Huntington’s Disease

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GeneFo

Register for free to connect individuals affected by Huntington’s Disease to other patients and families, to HD experts, and to innovative clinical trials near you

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MyID – Medical ID Bracelet

Access, store and manage your health information anytime and anywhere