Huntington’s Disease Services Flyer
Huntington’s disease is an inherited disorder that results in motor and cognitive symptoms that are progressive over time. At UCI Health, we specialize in the expert assessment, diagnosis and intervention in Huntington’s disease. Our team of fellowship-trained physicians and clinical staff are here to care for you and your family throughout all stages of Huntington’s disease. View the flyer and learn more >
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EveryLife Foundation for Rare Diseases Launches Young Adult Leadership Academy
The Everylife Foundation has launched the Young Adult Leadership Academy. The Academy will equip young advocates with the skills and knowledge necessary to be successful in professional patient representative roles. This is critical in providing training for the next generation of HD patient advocates.
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Trauma Intervention Program (TIP)
OC: 949-614-6333 | https://tiporangecounty.org
Riverside: 951-698-2453 | https://www.tipswrc.org
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ICD Code Roadmap Resource Guide
https://everylifefoundation.org/icd-code-roadmap
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ASGCT Patient-Friendly Resources
Gene therapy approaches for Huntington’s disease
Gene Therapy – Then, Now, Later Webinar
The Science Behind Gene Therapy Webinar
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Huntington’s Disease Resource by Genentech
Understanding Huntington’s Disease
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GeneFo
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MyID – Medical ID Bracelet
Access, store and manage your health information anytime and anywhere