2019 HDCare Symposium

Postcard From Palm Springs

Postcard from Palm Springs 2019 – English from CHDI on Vimeo.

The Longest Journey

On April 10 HD-CARE sponsored the presentation of The Longest Journey at the Innovation Center at UCI. The film is a documentary about a family’s efforts to raise awareness of and funds for HD research. It tracks the Shaffer family team’s non-stop cross-country bicycle trek. It is inspirational and left tears in the eyes of many viewers. It is available at Amazon movies, and is free for Prime members.

OC Marathon – 2019

On May 4 and 5 HD-CARE sponsored teams participating in the Orange County (California) Marathon, Half Marathon and 5K races. We raised almost $25,000 for support to the HD community. This money funds donations to HD-related research and clinical activities at UCI

2018 HDCare Symposium

OC Marathon – 2018

Listen to Axis Advocacy interviews with HD-CARE members (Listen).