Lisa didn’t know there was a history of Huntington’s disease in her family until she started experiencing symptoms. But if you do know there’s Huntington’s in your family, you can have a test from the age of 18 to see if you’ll also get it.
Covid-19 has consumed our entire lives, and for many, our livelihoods. This is a pandemic like we have never experienced in our lifetime, bringing out in many families fear, financial devastation, disabilities, isolation, suffering, and worst of all, loss of life. But through all this, the pandemic has uncovered emotions in many who rose to the occasion – a fight and stamina beyond human belief.
The uncontrolled jerking and writhing movements associated with Huntington’s disease are well known, along with cognitive decline. But doctors who treat Huntington’s patients are far less familiar with the pain and depression their patients endure almost constantly.
The OC Marathon wrote a very nice spotlight piece on HDCare. Read the whole article here.
BBC News video that looks at Huntington's Disease. Watch the full video here
Methods to Identify What Is Important to Patients Guidance for Industry, Food and Drug Administration Staff, and Other Stakeholders. Continue reading at FDA.org
Read more here.
Read more about this at the At Risk for Huntington's Disease Blog
and a hero who strives for the unthinkable read more on the CureHD blog here.